Rare Disease · United Kingdom · In-Market

UK ATTR Amyloidosis Payer & HTA

NICE TA696 (May 2021, since updated by TA984) opened NHS commissioning of tafamidis for ATTR-CM at scale — acoramidis’s pending appraisal and vutrisiran’s TA868 access route are the two other decisions defining the UK amyloidosis market.

NICE TA696 — ~2,000 patients started in 6 monthsNHS tafamidis spend ~£80–120M/yearVutrisiran NICE-recommended for ATTR-PN (TA868) and ATTR-CM (TA1115)Updated Q3 2026
Market United States GCC (Gulf) United Kingdom Stage
The Landscape

NICE TA696 transformed NHS ATTR-CM access in 2021 — acoramidis’s pending appraisal and vutrisiran’s TA868/TA1115 access route now set the ceiling for UK amyloidosis spend.

NICE TA696’s Final Appraisal Determination (12 May 2021) recommended tafamidis (Vyndaqel/Vyndamax, Pfizer) for ATTR-CM patients with NYHA class I–II symptoms, a positive Tc-PYP scan or biopsy confirmation, and eGFR above 25. A confidential Patient Access Scheme, estimated at a 50–70% discount to WAC, brought the cost-effectiveness estimate within the standard £20,000–£30,000/QALY threshold, built on the ATTR-ACT trial’s 2.5-year mortality relative risk of 0.70 extrapolated to a 10-year survival benefit, with a modelled QALY gain of 0.7–1.2. NHS England Highly Specialised Cardiology services fast-tracked commissioning across 25 specialist centres, with an estimated 2,000 patients started within six months of publication and total annual NHS ATTR-CM spend projected at £80–120 million at peak of roughly 5,000 patients. NICE reappraised and updated the guidance as TA984 in 2024, reaffirming the same commercial terms.

Two further NICE decisions define the next phase of the UK ATTR market. Acoramidis (BridgeBio) showed composite-endpoint superiority over placebo in the ATTRibute-CM trial and is expected to enter NICE appraisal following EMA approval; because no head-to-head trial against tafamidis exists, BridgeBio’s positioning rests on indirect NT-proBNP and functional-improvement comparisons against historical tafamidis data, and at a WAC similar to tafamidis’s, NICE’s cost-effectiveness model will need to translate any incremental clinical benefit into an incremental QALY gain that justifies the additional cost. Separately, vutrisiran (Amvuttra, Alnylam) was recommended for ATTR-PN under NICE TA868 (published 15 February 2023) with a straightforward Patient Access Scheme discount, not a Managed Access Agreement, and NICE has since issued TA1115 (published 10 December 2025) recommending vutrisiran for ATTR-CM specifically, giving tafamidis its first head-to-head NICE-recommended competitor in the cardiomyopathy indication.

TA696
NICE’s 12 May 2021 recommendation of tafamidis for ATTR-CM, updated as TA984 in 2024 — NHS England fast-tracked commissioning to ~2,000 patients within six months
£80–120M
Projected annual NHS tafamidis spend at peak (~5,000 ATTR-CM patients)
TA868 / TA1115
Vutrisiran’s NICE recommendations for ATTR-PN (TA868, 2023) and ATTR-CM (TA1115, December 2025) — both with a Patient Access Scheme discount, not a Managed Access Agreement
PAYER LANDSCAPE

UK ATTR amyloidosis agent NICE and NHS status

Drug (Brand / INN)NICE HTA RouteNICE Recommendation & PAS/MAANHS Commissioning ChannelCost-Effectiveness PositionKey Payer Risk
Vyndaqel/Vyndamax (tafamidis)Standard Technology Appraisal (TA696, 2021; updated TA984, 2024)Recommended with confidential PASNHS England Highly Specialised Cardiology — 25 centresWithin £20K–£30K/QALY threshold post-PAS (QALY gain 0.7–1.2)Acoramidis entry on indirect comparison; no head-to-head trial exists
Amvuttra (vutrisiran)Standard Technology Appraisal (TA868, 2023; extended TA1115, 2025)Recommended with confidential Patient Access SchemeNHS England Highly Specialised Cardiology — ATTR-PN and ATTR-CMRecommended for both ATTR-PN (TA868) and ATTR-CM (TA1115) indicationsFirst NICE-recommended competitor to tafamidis in the ATTR-CM indication

Sources: NICE TA696 Final Appraisal Determination (tafamidis), 12 May 2021, updated as TA984, 2024; NICE TA868 Final Appraisal Determination (vutrisiran, ATTR-PN), 15 February 2023; NICE TA1115 (vutrisiran, ATTR-CM), 10 December 2025; NHS England ATTR-CM and ATTR-PN service commissioning documentation; ATTRibute-CM trial data (acoramidis), NEJM 2024; EMA acoramidis application timeline.

Commercial Questions

What this assessment answers

Every section answers a named commercial question your team is asking, scoped to your asset.

01
What were NICE TA696’s exact cost-effectiveness parameters and PAS structure for tafamidis, and how quickly has NHS England Highly Specialised Cardiology scaled ATTR-CM commissioning since publication?

Delivers

  • TA696 cost-effectiveness modelling breakdown (QALY gain 0.7–1.2
  • PAS discount estimate 50–70%)
  • NHS commissioning rollout data (25 centres
  • ~2,000 patients in 6 months)
  • annual spend projection at peak (£80–120M)
  • TA984’s 2024 reappraisal terms
02
How will NICE evaluate acoramidis against tafamidis absent a head-to-head trial, and what incremental QALY gain must BridgeBio demonstrate to justify its WAC?

Delivers

  • Indirect comparison methodology analysis (NT-proBNP, functional endpoints)
  • expected NICE appraisal timeline post-EMA approval
  • competitive positioning scenarios vs tafamidis at PAS-adjusted price
03
What are the terms of vutrisiran’s NICE TA868 recommendation for ATTR-PN, and how does TA1115’s extension into ATTR-CM change the competitive picture against tafamidis?

Delivers

  • TA868 Patient Access Scheme terms for ATTR-PN
  • TA1115 (December 2025) extension into ATTR-CM
  • competitive positioning against tafamidis now that vutrisiran has a NICE-recommended cardiomyopathy indication

Custom assessment delivered in 72 hours.

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Contents

What's inside

Rare Disease · 24–32 pp · In-Market · Analyst report + Excel model + PowerPoint readout

1 UK ATTR Payer & Commissioning Landscape — NHS Highly Specialised Cardiology Overview 4 pp
  • How NHS England Highly Specialised Cardiology services commission ATTR-CM care across 25 specialist centres following NICE's tafamidis recommendation
  • The scale of NHS ATTR-CM treatment to date: roughly 2,000 patients started within six months of TA696's May 2021 publication
2 NICE TA696 Tafamidis — Cost-Effectiveness Modelling & NHS Commissioning Rollout 6 pp
  • How a confidential Patient Access Scheme discount of 50-70% off WAC brought tafamidis within the standard £20,000-£30,000 per QALY threshold
  • Why TA984's 2024 reappraisal reaffirmed the same commercial terms, with peak NHS spend projected at £80-120 million across roughly 5,000 patients
3 Acoramidis NICE Pipeline — Indirect Comparison & Competitive Positioning 5 pp
  • Why acoramidis's NICE case rests on indirect NT-proBNP and functional-improvement comparisons against historical tafamidis data, with no head-to-head trial
  • What incremental QALY gain BridgeBio must demonstrate to justify a WAC similar to tafamidis's once NICE appraisal begins post-EMA approval
4 Vutrisiran NICE TA868/TA1115 — Patient Access Scheme & ATTR-CM Extension 5 pp
  • TA868's February 2023 recommendation of vutrisiran for ATTR-PN under a straightforward Patient Access Scheme, not a Managed Access Agreement
  • How TA1115's December 2025 extension into ATTR-CM gives tafamidis its first NICE-recommended head-to-head competitor in cardiomyopathy
5 NHS ATTR Programme Budget — CM and PN Combined Spend Modelling 3 pp
  • Projected peak NHS annual spend of £80-120 million across roughly 5,000 ATTR-CM patients under tafamidis's confidential PAS pricing
  • How vutrisiran's recommendation across both ATTR-PN (TA868) and ATTR-CM (TA1115) indications compounds the combined NHS ATTR programme budget
6 Devolved Nations — Scotland (SMC) and Wales (AWMSG) Divergence Risk 3 pp
  • How Scotland's SMC and Wales's AWMSG assess ATTR agents separately against NICE's TA696/TA868 precedent, creating a divergence risk
  • What a devolved-nation deviation from NICE's tafamidis and vutrisiran recommendations would mean for UK-wide access planning
Appendix and source ledger included · 45-minute analyst readout included with delivery
Formats

Included with every brief

PDF
PDF Brief
ATTR Amyloidosis Payer & HTA Assessment — UK Complete Edition
25–30 page payer brief: NICE TA696/TA984 tafamidis commissioning, acoramidis’s pending NICE comparison, and vutrisiran’s TA868/TA1115 access route.
XLS
Excel Model
Payer Coverage Grid — Excel
Drug-by-drug NICE HTA status, PAS/MAA structure, NHS commissioning channel, and spend modelling for UK ATTR agents in editable Excel format.
PPT
PowerPoint
Executive Readout — PowerPoint
12–15 slide readout deck for commercial team presentations, formatted to AXLRx design standards.
Methodology

How AXLRx builds this assessment

Prepared by MoatRx analysts.

This assessment is built from NICE’s published Technology Appraisal documentation, NHS England Highly Specialised Cardiology commissioning specifications, and the ATTRibute-CM trial evidence supporting acoramidis’s pending NICE review.

Key sources: NICE TA696 Final Appraisal Determination (tafamidis), 12 May 2021, updated as TA984, 2024; NICE TA868 Final Appraisal Determination (vutrisiran, ATTR-PN), 15 February 2023; NICE TA1115 (vutrisiran, ATTR-CM), 10 December 2025; NHS England ATTR-CM service commissioning and ATTR-PN registry specifications; ATTRibute-CM trial results, NEJM 2024; EMA acoramidis application timeline. Devolved-nation positions (Scotland’s SMC, Wales’s AWMSG) are assessed separately against NICE’s TA696/TA868 precedent.

  • NICE TA696 recommendation, PAS structure, and cost-effectiveness parameters verified against the NICE TA696 Final Appraisal Determination, 12 May 2021, and the TA984 update, 2024
  • NHS commissioning rollout (25 centres; ~2,000 patients in 6 months) verified against NHS England ATTR-CM service commissioning documentation
  • Vutrisiran’s Patient Access Scheme terms verified against the NICE TA868 Final Appraisal Determination, 2023, and the NICE TA1115 Final Appraisal Determination for ATTR-CM, 10 December 2025
  • Acoramidis trial data verified against ATTRibute-CM published results, NEJM 2024, and the EMA acoramidis application timeline
FAQ

Frequently asked questions

Deliverables
What formats are included with every assessment?
Every commissioned assessment includes three deliverables: a 20–30 page PDF analyst assessment with verified sources and exhibit tables, an editable Excel model (drug comparison grid, payer formulary data, or patient flow model — depending on deliverable type), and a 10–15 slide PowerPoint readout deck formatted for commercial team presentations. An optional 60-minute analyst readout call is included with all deliveries.
Sources
What sources does AXLRx use, and how are findings verified?
AXLRx builds from primary sources only — regulatory databases (FDA, MHRA, SFDA), peer-reviewed journals (NEJM, Blood, JAMA), live payer and HTA body publications (NICE, ICER, MOH), and NHS commissioning documentation. No secondary summaries or market research reports. Every factual claim is independently verified before inclusion. Source citations are provided for all key data points in the delivered assessment.
Customisation
Can I tailor the assessment to my specific question, geography, or comparator set?
Yes. The intake form captures your indication, target geography, key comparator drugs, and the specific commercial question you need answered. A scoping call confirms scope before research starts. Custom extensions, such as additional payer markets, pipeline agent profiles, or country-specific deep-dives, can be added to any standard assessment. Commission via the intake form to start.
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Commission this assessment

AXLRx ATTR Amyloidosis Payer & HTA is built for market access, HEOR, and pricing teams navigating NICE TA696/TA984’s tafamidis commissioning, vutrisiran’s TA868/TA1115 access route, and acoramidis’s pending NICE comparison in the UK. Custom assessment in 72 hours.

1
Submit your request

Specify indication, payer focus (NICE TA, MAA, PAS), and commercial question.

2
Scoping call

AXLRx analyst confirms payer scope, NICE appraisal analysis, and delivery format.

3
Delivery

Research-verified assessment in 72 hours with optional analyst readout.